A Short Biography:
Dr. Baker is Adjunct Assistant Professor in the Department of Pediatrics, Division of Pediatric Hematology/Oncology at the UCLA David Geffen School of Medicine: 2014-2019. Her research and expertise examine the organizational influences on rare blood disorder health care systems. Dr. Baker serves as Public Health Director of the Western States Hemophilia Treatment Centers/Region IX: the regional network of 13 federally supported specialty blood disorder centers in California, Hawaii, Nevada and Guam.
In the Sickle Cell sphere, Dr. Baker is Policy Director for the Pacific Sickle Cell Regional Collaborative, a federal HRSA Sickle Cell Disease Demonstration Treatment Project throughout thirteen states and the US Pacific Islands. She serves as Public Health Director for Networking California for Sickle Cell Care, a statewide initiative to build a network adult sickle cell centers, enhance workforce, strengthen surveillance, and increase outreach/education.
At the national level, Dr. Baker Co-Chairs the Patient Satisfaction Survey for the US Hemophilia Treatment Center Network. She serves on the Steering Committee of the Hematology Utilization Group Study. Dr. Baker Co-Chairs the National Hemophilia Foundation's State of the Science-Research's Working Group on Diversity, Health Services Research and Implementation Science; and co-designs the public health track for NHF's Annual Bleeding Disorder Conference.
Dr. Baker completed two terms on FDA's Blood Product Advisory Committee.
Dr. Baker's expertise is in implementation, spread, and evaluation of innovations in health care delivery, surveillance, clinical education, costs, and policy with a focus on vulnerable populations, particularly rare and under-recognized chronic and genetic disorders.
Health Care Delivery: Dr. Baker led the development of the first ever Hemophilia Treatment Centers in Nevada, Hawaii, and the US Pacific.
Clinical education: devised the landmark tri-regional advance practice seminars for Hemophilia Center clinicians throughout the Mountain, Northwest and Western US states and territories. More recently, co-developing a novel remote mini-certificate course in Sickle Cell Disease for Physician Assistants and Nurse Practitioners being piloted at two California Universities.
Surveillance: Founding member of CDC's Female Bleeding Disorders Surveillance module and Co-Chair CDC's Bleeding Disorders Surveillance Socio-economic Health Status Work Group.
Cost: Policy: Devised 340B technical assistance series stimulating the adoption of Hemophilia Treatment Center 340B programs throughout the Western States Region.
Dr. Baker is executive producer of Blood Roots, a documentary which chronicles pioneers of the team based hemophilia care model in the Western US: https://www.youtube.com/watch?v=Nf3hruO1j9k
A selected list of publications:
Valentino Leonard A, Baker Judith R, Butler Regina, Escobar Miguel, Frick Neil, Karp Susan, Koulianos Kollet, Lattimore Susan, Nugent Diane, Pugliese Joseph N, Recht Michael, Reding Mark T, Rice Michelle, Thibodeaux Constance B, Skinner Mark
Integrated Hemophilia Patient Care via a National Network of Care
Centers in the United States: A Model for Rare Coagulation Disorders
Journal of blood medicine,
Kanter Julie, Smith Wally R, Desai Payal C, Treadwell Marsha, Andemariam Biree, Little Jane, Nugent Diane, Claster Susan, Manwani Deepa G, Baker Judith, Strouse John J, Osunkwo Ifeyinwa, Stewart Rosalyn W, King Allison, Shook Lisa M, Roberts John D, Lanzkron Sophie
Building access to care in adult sickle cell disease: defining models of care, essential components, and economic aspects
ZY Zhou, M Koerper, K Johnson, B Riske, JR Baker, R Curtis, M Ullman, R Curtis, JL Poon, M Lou, M Nichol.
Burden of Illness: Direct and Indirect Costs among Persons with Hemophilia A in the United States.
J Med Econ,
R Curtis, JR Baker, BK Riske, M Ullman, X Niu, K Norton, M Lou, MB Nichol.
Young adults with hemophilia in the US: demographics, comorbidities, and health status
American Journal of Hematology ,
X Niu, JL Poon, B Riske, ZY Zhou, M Ullman, M Lou, JR Baker, M Koerper, R Curtis, M Nichol
Physical activity and health outcomes in persons with Hemophilia B
Baker, J. R., Riske, B., Drake, J. H., Forsberg, A. D., Atwood, R., Voutsis, M. and Shearer, R.
US Hemophilia Treatment Center population trends 19902010: patient diagnoses, demographics, health services utilization
ZY Zhou, J Wu, JR Baker, R Curtis, A Forsberg, H Huszti, M Koerper, M Lou, R Miller, K Parish, B Riske, A Shapiro, M Ullman, K Johnson.
Hemophilia Utilization Group Study - Part Va (HUGS Va): Design, Methods and Baseline Data
Zhou Zheng-Yi, Riske Brenda, Forsberg Ann D, Ullman Megan, Baker Judith R, Koerper Marion A, Curtis Randall G, Lou Mimi, Joanne Wu, Johnson Kathleen A
Self-reported barriers to hemophilia care in people with factor VIII deficiency
American Journal of Preventive Medicine,
2011; 41(6 Suppl 4):
VR Byams, PA Kouides, R Kulkarni, JR Baker, DL Brown, JC Gill, AM Grant, AH James, BA Konkle, J Maahs, M Malone Dumas, S McAlister, D Nance, D Nugent, CS Philipp, JM Soucie, E Stang
Surveillance of Females with Inherited Bleeding Disorders in United States Hemophilia Treatment Centers
2011; 17 ((Suppl. 1)):