A Short Biography:
Dr. Baker is Adjunct Assistant Professor in the Department of Pediatrics, Division of Pediatric Hematology/Oncology at the UCLA David Geffen School of Medicine: 2014-2019. Dr. Baker is devoted to advancing health care systems, quality, surveillance, and policy to strengthen the health of people with rare or under recognized chronic genetic disorders. Dr. Baker serves as Public Health Director of the Western States Hemophilia Treatment Centers/Region IX: the regional network of 13 federally supported specialty blood disorder centers in California, Hawaii, Nevada and Guam.
At the national level, Dr. Baker serves on the Project Review Committee for CDC's National Surveillance on Inherited Bleeding Disorders. She co-develops the National Hemophilia Foundation's public health content for it's Annual Bleeding Disorder Conference. Dr. Baker Co-Chairs the National Patient Satisfaction Survey for the US Hemophilia Treatment Center Network.
In the Sickle Cell sphere, Dr. Baker is Policy Director for the Pacific Sickle Cell Regional Collaborative, a federal HRSA Sickle Cell Disease Demonstration Treatment Project throughout thirteen states and the US Pacific Islands. She serves as Public Health Director for Networking California for Sickle Cell Care, a statewide initiative to build a network adult sickle cell centers, enhance workforce, strengthen surveillance, and increase outreach/education. Dr. Baker serves on FDA's Blood Product Advisory Committee.
Dr. Baker's expertise is in implementation, spread, and evaluation of innovations in health care delivery, surveillance, clinical education, costs, and policy with a focus on vulnerable populations, particularly rare and under-recognized chronic and genetic disorders. Health Care Delivery: Dr. Baker led the development of the first ever Hemophilia Treatment Centers in Nevada, Hawaii, and the US Pacific. Clinical education: devised the landmark tri-regional advance practice seminars for Hemophilia Center clinicians throughout the Mountain, Northwest and Western US states and territories. Surveillance: Founding member of CDC's Female Bleeding Disorders Surveillance module and Co-Chair CDC's Bleeding Disorders Surveillance Socio-economic Health Status Work Group. Co-Chairs the Hemophilia and Thrombosis Data Set and National Patient Satisfaction Survey Work Groups for the US Hemophilia Treatment Center Network. Cost: Steering Committee of the Hemophilia Utilization Group Study. Policy: Devised 340B technical assistance series stimulating the adoption of Hemophilia Treatment Center 340B programs throughout the Western States Region. Dr. Baker is executive producer of Blood Roots, a documentary which chronicles pioneers of the team based hemophilia care model in the Western US: http://www.youtube.com/watch?v=H01d0cfzuFA She serves on public and private committees including the federal CDC, FDA, and HRSA; the California Department of Healthcare Services; the National Hemophilia Foundation, and the American Thrombosis and Hemostasis Network.
A selected list of publications:
Kanter Julie, Smith Wally R, Desai Payal C, Treadwell Marsha, Andemariam Biree, Little Jane, Nugent Diane, Claster Susan, Manwani Deepa G, Baker Judith, Strouse John J, Osunkwo Ifeyinwa, Stewart Rosalyn W, King Allison, Shook Lisa M, Roberts John D, Lanzkron Sophie
Building access to care in adult sickle cell disease: defining models of care, essential components, and economic aspects
R Curtis, JR Baker, BK Riske, M Ullman, X Niu, K Norton, M Lou, MB Nichol.
Young adults with hemophilia in the US: demographics, comorbidities, and health status
American Journal of Hematology ,
ZY Zhou, M Koerper, K Johnson, B Riske, JR Baker, R Curtis, M Ullman, R Curtis, JL Poon, M Lou, M Nichol.
Burden of Illness: Direct and Indirect Costs among Persons with Hemophilia A in the United States.
J Med Econ,
X Niu, JL Poon, B Riske, ZY Zhou, M Ullman, M Lou, JR Baker, M Koerper, R Curtis, M Nichol
Physical activity and health outcomes in persons with Hemophilia B
Baker, J. R., Riske, B., Drake, J. H., Forsberg, A. D., Atwood, R., Voutsis, M. and Shearer, R.
US Hemophilia Treatment Center population trends 19902010: patient diagnoses, demographics, health services utilization
ZY Zhou, J Wu, JR Baker, R Curtis, A Forsberg, H Huszti, M Koerper, M Lou, R Miller, K Parish, B Riske, A Shapiro, M Ullman, K Johnson.
Hemophilia Utilization Group Study - Part Va (HUGS Va): Design, Methods and Baseline Data
Zhou Zheng-Yi, Riske Brenda, Forsberg Ann D, Ullman Megan, Baker Judith R, Koerper Marion A, Curtis Randall G, Lou Mimi, Joanne Wu, Johnson Kathleen A
Self-reported barriers to hemophilia care in people with factor VIII deficiency
American Journal of Preventive Medicine,
2011; 41(6 Suppl 4):
VR Byams, PA Kouides, R Kulkarni, JR Baker, DL Brown, JC Gill, AM Grant, AH James, BA Konkle, J Maahs, M Malone Dumas, S McAlister, D Nance, D Nugent, CS Philipp, JM Soucie, E Stang
Surveillance of Females with Inherited Bleeding Disorders in United States Hemophilia Treatment Centers
2011; 17 ((Suppl. 1)):