Judith Baker, Dr.P.H., M.S.P.H.

A Short Biography:

Dr. Baker is Adjunct Assistant Professor in the Department of Pediatrics, Division of Pediatric Hematology/Oncology at the UCLA David Geffen School of Medicine: 2014-2019. Dr. Baker is devoted to advancing health care systems, quality, surveillance, and policy to strengthen the health of people with rare or under recognized chronic genetic disorders. Dr. Baker serves as Public Health Director of the Western States Hemophilia Treatment Centers/Region IX: the regional network of 13 federally supported specialty blood disorder centers in California, Hawaii, Nevada and Guam.

At the national level, Dr. Baker serves on the Project Review Committee for CDC's National Surveillance on Inherited Bleeding Disorders.  She co-develops the National Hemophilia Foundation's  public health content for it's Annual Bleeding Disorder Conference. Dr. Baker Co-Chairs the National Patient Satisfaction Survey for the US Hemophilia Treatment Center Network.

In the Sickle Cell sphere, Dr. Baker is Policy Director for the Pacific Sickle Cell Regional Collaborative, a federal HRSA Sickle Cell Disease Demonstration Treatment Project throughout thirteen states and the US Pacific Islands. She serves as Public Health Director for Networking California for Sickle Cell Care, a statewide initiative to build a network adult sickle cell centers, enhance workforce, strengthen surveillance, and increase outreach/education.  Dr. Baker serves on FDA's Blood Product Advisory Committee.


Work Titles
Federal Hemophilia Treatment Centers/Region IX Administrative Director, Western States Regional Hemophilia Network Public Health Director, Center for Comprehensive Care & Diagnosis of Inherited Blood Disorders
Education:
Degrees:
Dr.P.H., UCLA
M.S.P.H., University of Michigan
Honors and Awards:
National Hemophilia Foundation, Meritorious Service Award
US Food and Drug Administration

Contact Information:

Personal Email Address:

jbaker@c3dibd.org

Work Email Address:

jbaker@c3dibd.org


Website:

Region IX

Work Phone Number:

818-538-4686

Research Interest:

Baker’s research focuses on regional systems of care, costs and burden of illness, organizational influences on quality and outcomes, implementation and dissemination, and evaluating 340B impact.

Detailed Biography:

Dr. Baker's expertise is in implementation, spread, and evaluation of innovations in health care delivery, surveillance, clinical education, costs, and policy with a focus on vulnerable populations, particularly rare and under-recognized chronic and genetic disorders. Health Care Delivery: Dr. Baker led the development of the first ever Hemophilia Treatment Centers in Nevada, Hawaii, and the US Pacific. Clinical education: devised the landmark tri-regional advance practice seminars for Hemophilia Center clinicians throughout the Mountain, Northwest and Western US states and territories. Surveillance: Founding member of CDC's Female Bleeding Disorders Surveillance module and Co-Chair CDC's Bleeding Disorders Surveillance Socio-economic Health Status Work Group. Co-Chairs the Hemophilia and Thrombosis Data Set and National Patient Satisfaction Survey Work Groups for the US Hemophilia Treatment Center Network. Cost: Steering Committee of the Hemophilia Utilization Group Study. Policy: Devised 340B technical assistance series stimulating the adoption of Hemophilia Treatment Center 340B programs throughout the Western States Region. Dr. Baker is executive producer of Blood Roots, a documentary which chronicles pioneers of the team based hemophilia care model in the Western US: http://www.youtube.com/watch?v=H01d0cfzuFA She serves on public and private committees including the federal CDC, FDA, and HRSA; the California Department of Healthcare Services; the National Hemophilia Foundation, and the American Thrombosis and Hemostasis Network.

Publications:

A selected list of publications:

Riske Brenda, Shearer Rick, Baker Judith R   Patient satisfaction with US Hemophilia Treatment Center Care, Teams and Services: The First National Survey Haemophilia : the official journal of the World Federation of Hemophilia, 2020; 26(6): 991-998.
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Kanter Julie, Smith Wally R, Desai Payal C, Treadwell Marsha, Andemariam Biree, Little Jane, Nugent Diane, Claster Susan, Manwani Deepa G, Baker Judith, Strouse John J, Osunkwo Ifeyinwa, Stewart Rosalyn W, King Allison, Shook Lisa M, Roberts John D, Lanzkron Sophie   Building access to care in adult sickle cell disease: defining models of care, essential components, and economic aspects Blood advances, 2020; 4(16): 3804-3813.
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CX Chen, JR Baker, MB Nichol   Economic Burden of Illness among Persons with Hemophilia B from HUGS Vb: Examining the Association of Severity and Treatment Regimens with Costs and Annual Bleed Rates Value in Health , 2017; .
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MA Mazepa PE Monahan JR Baker BK Riske JM Soucie   Men with severe hemophilia in the United States: birth cohort analysis of a large national database Blood, 2016; 127(24): 3073-3081.
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Tiffany F. Lin, MD, Pam Carhill, MPT, James N. Huang, MD, and Judith R. Baker, DPH, MHSA   Capacity Building for Rare Bleeding Disorders in the Remote Commonwealth of the Northern Mariana Islands American Journal of Public Health, 2016; 106(4): 658-661.
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R Curtis, JR Baker, BK Riske, M Ullman, X Niu, K Norton, M Lou, MB Nichol.   Young adults with hemophilia in the US: demographics, comorbidities, and health status American Journal of Hematology , 2015; 90(S2): S11-S16.
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ZY Zhou, M Koerper, K Johnson, B Riske, JR Baker, R Curtis, M Ullman, R Curtis, JL Poon, M Lou, M Nichol.   Burden of Illness: Direct and Indirect Costs among Persons with Hemophilia A in the United States. J Med Econ, 2015; 18(6): 457-465.
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X Niu, JL Poon, B Riske, ZY Zhou, M Ullman, M Lou, JR Baker, M Koerper, R Curtis, M Nichol   Physical activity and health outcomes in persons with Hemophilia B Haemophilia, 2014; 1-8.
Baker, J. R., Riske, B., Drake, J. H., Forsberg, A. D., Atwood, R., Voutsis, M. and Shearer, R.   US Hemophilia Treatment Center population trends 1990–2010: patient diagnoses, demographics, health services utilization Haemophilia, 2013; 19: 21–26.
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Monahan Paul E, Baker Judith R, Riske Brenda, Soucie J Michael   Physical functioning in boys with hemophilia in the U.S American Journal of Preventive Medicine, 2011; 41(6 Suppl 4): S360-8.
ZY Zhou, J Wu, JR Baker, R Curtis, A Forsberg, H Huszti, M Koerper, M Lou, R Miller, K Parish, B Riske, A Shapiro, M Ullman, K Johnson.   Hemophilia Utilization Group Study - Part Va (HUGS Va): Design, Methods and Baseline Data Haemophilia, 2011; 1-8.
Baker Judith R, Riske Brenda, Voutsis Mariam, Cutter Susan, Presley, Rodney   Insurance, home therapy, and prophylaxis in U.S. youth with severe hemophilia American Journal of Preventive Medicine, 2011; 41(6 Suppl 4): S338-45.
Zhou Zheng-Yi, Riske Brenda, Forsberg Ann D, Ullman Megan, Baker Judith R, Koerper Marion A, Curtis Randall G, Lou Mimi, Joanne Wu, Johnson Kathleen A   Self-reported barriers to hemophilia care in people with factor VIII deficiency American Journal of Preventive Medicine, 2011; 41(6 Suppl 4): S346-53.
VR Byams, PA Kouides, R Kulkarni, JR Baker, DL Brown, JC Gill, AM Grant, AH James, BA Konkle, J Maahs, M Malone Dumas, S McAlister, D Nance, D Nugent, CS Philipp, JM Soucie, E Stang   Surveillance of Females with Inherited Bleeding Disorders in United States Hemophilia Treatment Centers Haemophilia , 2011; 17 ((Suppl. 1)): 6-13 .
Drake John H, Soucie J Michael, Cutter Susan C, Forsberg Ann D, Baker Judith R, Riske Brenda   High school completion rates among men with hemophilia American Journal of Preventive Medicine, 2010; 38(4 Suppl): S489-94.
Baker Judith R, Crudder Sally O, Riske Brenda, Bias Val, Forsberg Ann   A model for a regional system of care to promote the health and well-being of people with rare chronic genetic disorders American Journal of Public Health, 2005; 95(11): 1910-6.
Zabala Roselie V, Baker Judith R   Guam's quest for improved hemophilia care Pacific Health Dialog, 2002; 9(2): 317-20.

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